Hello all
Well, it has been a year and seven months since I last posted. Thanks Kin for missing me. Idi will know what happened and I wonder if she still posts. My battle has not been with gambling but in staying alive. In the second lockdown, I became very seriously I’ll losing all my function, dizziness and tachycardia, and over the period of a month became unable to walk, stand or even sit upright. I was unable to access any medical care in lockdown and ended up doing my own ECG. It is a long story and some day i will write about it but I ended up spending four months in hospital. I was diagnosed with two terminal anD incurable diseases, the very rare one in eight million systemic AL amyloidosis and multiple myeloma or bone marrow cancer. I have been trapped on a bed in one room now since discharge in August 21 waiting for appropriate disabled access housing. In May 21 I was given three to four months to live but am still here despite having zero quality of life. I have carers and Pete helps a lot. I am carried out using specialist equipment and stretchered everywhere, It has been one difficult road and I will be on chemo for two years. The amyloid is in my heart, kidneys, liver, spleen autonomic nervous system and started in my kidneys, I am on twice weekly dialysis. Amyloid is a disease of the plasma cells in the bone marrow which create misfolded proteins. The proteins deposit in organs and basically shut them down. It is pretty horrible. But I am still alive. Have I gambled through all this. I think I probably did once as you can imagine being stuck in a bed day in day out gets pretty boring. It did nothing for me and I don’t want to do it any more, it simply,doesn’t hold anything for me now. I am much more engaged now with staying alive. merry Xmas all.
